“Rare are many “ – February 29th is Rare Disease Day
300 million people worldwide live with a rare disease. Rare Disease Day is celebrated each year on the last day of February to raise awareness on rare diseases and improve access to treatment and care for those affected, and their families.
At INNOTIO, we are passionate about working to support people with rare conditions and raise awareness on such diseases.
With long lasting relationships with experts in the field of several rare conditions such as Hemophagocytic Lymphohistiocytosis (HLH), Spinal Muscular Atrophy (SMA), Lysosomal Storage Disorders (LSDs), and Von Willebrand Disease (VWD), we hope that the programs, we help our clients design and execute, will make the world better and provide patients who need it most with long-term solutions.
As part of our social commitment, INNOTIO supports the Malteser initiative “Mädelstreff”, encouraging displaced girls and young women. One of our activities for the Rare Disease Day was an engaging and memorable workshop to raise awareness for people with rare conditions.
In the coming days, our team is proud to have been active to support raising awareness on Rare Diseases and on February 29th, 2020 we will spread the voice…because “Rare are many”.